Sashenka Paatz
4 min readMar 30, 2021

Lori Moore’s Life-Time Struggle With Alpha-1

Photo by Jude Beck on Unsplash

“The doctors didn’t say it was asthma. They didn’t say it was anything specific. They just had her on puffers. There was just too much stress on her body and my sister died.”

My oldest sister was 59 when she died from what doctors referred to as “pulmonary complications”.

“They never checked for Alpha-1.”

Granted she was a smoker. But how different her life might have looked if she tested positive for the rare blood disorder.

Would she have quit smoking? Would she have received life-preserving treatment like my twin sister?

One can only wonder in retrospect.

“In 2012, while my twin sister was skiing in Whistler, she started having trouble breathing as she came down a run. They ended up taking her to the hospital.”

Lori Moore and her twin sister, Lynn Kent. Courtesy of Lori Moore.

“She has fortunate enough to see a cardiologist who knew about Alpha-1 and suggested she get her lungs checked out.”

I was also advised to get tested, and it turns out we both have Alpha-1. So do our parents.



Sashenka Paatz

Canadian journalist, traveller and teacher with a passion for creativity, organization, teaching and advocating for others.